BootsnAll Travel Network



US Laws, Travel, and the United Nations Convention on the Rights of Persons with Disabilities (CRPD)

May 15th, 2008

One way to understand the movement for Inclusive Travel and Inclusive Destination Development is to think of it as the social phenomenon for implementing Article 30 of the United Nations Convention on the Rights of Persons with Disabilities.

A new tool exists to help understand the impact of the CRPD with reference to US standards. The United States National Council of Disabilities has released a Comparative Analysis of Disability Laws in the United States to the United Nations Convention on the Rights of Persons with Disabilities (CRPD). Hopefully similar studies will be undertaken in other countries. In particular I encourage analysis of Article 30 and contribution of those analyses to the Google group “Article 30: The CRPD on Tourism, Sports, & Leisure.”

Here is the document’s analysis of Article 30 of the CRPD as it relates to US Law:

Article 30 – Participation in Cultural Life, Recreation, Leisure, and Sport

The United States’ approach to participation in cultural life, recreation, leisure, and sport is based almost entirely on an antidiscrimination model. This means that to the extent that such opportunities exist for the general population, the federal government provides a legal right to people with disabilities to participate in such activities without discrimination. In terms of enforcement, the Department of Justice has made accessibility of cultural and recreation facilities a priority. But the larger project envisioned by Article 30, including enabling persons with disabilities to develop and utilize creative and artistic potential, establishing support and recognition of specific cultural and linguistic identities, and encouraging mainstreaming of sporting opportunities, is largely left to private actors and advocacy organizations. Accordingly, a gap exists between U.S. law and CRPD protection, albeit one that could be filled with aggressive implementation and/or additional Congressional action.

In the Appendix they further elaborate:

Coverage of United States Law

United States domestic law has several provisions that prevent discrimination against people with disabilities in cultural life, recreation, leisure, and sport. Many such activities take place at privately owned places of public accommodation – that is, privately owned businesses or establishments that open themselves up to the public – and are covered by Title III of the ADA. As such, the owners and operators cannot discriminate in the full and equal enjoyment of the goods, services, facilities, privileges, advantages, or accommodations.

Title III’s reach has therefore extended significantly into recreation and cultural opportunities for people with disabilities. The organizers of sports and recreation activities must make reasonable accommodations unless such accommodation would fundamentally alter the nature of the goods or services being provided. Thus, for example, the Professional Golf Association had to provide a golf cart as a reasonable accommodation to a professional golfer to allow him to participate in tournament play. A requested accommodation also does not have to made if it causes a direct threat to the health or safety of others. Title III has been applied to sports leagues; i.e., its coverage is not limited to actual locations.

As discussed above, pursuant to the Telecommunications Act of 1996, the Federal Communications Commission has adopted rules requiring closed captioning of most, though not all, television programming.

Similarly, as with any Title III covered entity, facilities that house cultural and recreational opportunities have accessibility obligations. Facilities that predate the ADA must be accessible to the extent that doing so is “readily achievable,” and new facilities (and modifications to existing facilities) must be more fully accessible to people with disabilities in accordance with the ADAAG standards. The accessibility of entertainment venues (sports stadiums and movie theatres) has been a heavily litigated area. In particular, there have been several “line of sight” cases, involving the issue of whether people who used wheelchairs are entitled to seats where they can see over people who stand in the rows in front of them. Another frequently litigated issue is whether wheelchair seating in stadium-style movie theaters must offer choices of position within the theater, and to what extent wheelchair seating must be integrated into the stadium seating section of the theater.

Some of the parties that control and manage recreational opportunities are public entities; for example, public parks and high school athletic associations. Therefore, Title II of the ADA and Section 504 of the Rehabilitation Act (to the extent these entities receive federal funds) are relevant as well. A public entities’ obligations regarding recreation opportunities under Title II and Section 504 closely track those of private operators of places of public accommodation: they cannot discriminate on the basis of disability in their operations (which includes a duty to provide reasonable accommodation), and must make their facilities accessible. One frequently litigated issue in this area involves public sports associations’ role as standard-setters for who gets to participate in high school athletics.

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Tourism in the United Nations Convention on the Rights of Persons with Disabilities (CRPD)

March 21st, 2008

The CRPD is unique among international human rights treaties in that it specifically addresses the issues of physical and program accessibility in tourism for persons with disabilities:

Article 30, Participation in cultural life, recreation, leisure and sport

1. States Parties recognize the right of persons with disabilities to take part on an equal basis with others in cultural life, and shall take all appropriate measures to ensure that persons with disabilities:

(a) Enjoy access to cultural materials in accessible formats;
(b) Enjoy access to television programmes, films, theatre and other cultural activities, in accessible formats;
(c) Enjoy access to places for cultural performances or services, such as theatres, museums, cinemas, libraries and tourism services, and, as far as possible, enjoy access to monuments and sites of national cultural importance.

2. States Parties shall take appropriate measures to enable persons with disabilities to have the opportunity to develop and utilize their creative, artistic and intellectual potential, not only for their own benefit, but also for the enrichment of society.

3. States Parties shall take all appropriate steps, in accordance with international law, to
ensure that laws protecting intellectual property rights do not constitute an unreasonable or discriminatory barrier to access by persons with disabilities to cultural materials.

4. Persons with disabilities shall be entitled, on an equal basis with others, to recognition
and support of their specific cultural and linguistic identity, including sign languages and deaf culture.

5. With a view to enabling persons with disabilities to participate on an equal basis with others in recreational, leisure and sporting activities, States Parties shall take appropriate measures:

(a) To encourage and promote the participation, to the fullest extent possible, of persons with disabilities in mainstream sporting activities at all levels;
(b) To ensure that persons with disabilities have an opportunity to organize, develop and participate in disability-specific sporting and recreational activities and, to this end, encourage the provision, on an equal basis with others, of appropriate instruction, training and resources;
(c) To ensure that persons with disabilities have access to sporting, recreational and tourism venues;
(d) To ensure that children with disabilities have equal access with other children to
participation in play, recreation and leisure and sporting activities, including those activities in the school system;
(e) To ensure that persons with disabilities have access to services from those involved in the organization of recreational, tourism, leisure and sporting activities.

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The Rolling Rains Report Featured Entrant in the National Geographic and Ashoka’s Changemakers Geotourism Challenge

March 15th, 2008

The Rolling Rains Report Featured Entrant in the National Geographic and Ashoka’s Changemakers Geotourism Challenge

Global competition will uncover most innovative projects that support better tourism

[San Jose, CA, USA] – The National Geographic Society and Ashoka’s Changemakers have introduced the first Geotourism Challenge to identify and showcase innovators in tourism development, management, and marketing.

The one-of-a-kind online collaborative competition is designed to raise awareness about how tourism can help sustain, enhance and preserve local culture and environment.

The Rolling Rains Report is a featured entrant in this initiative at – http://www.changemakers.net/en-us/node/5951. The Rolling Rains Report is an experiment in achieving social inclusion. As a daily online publication it provides research and educational material emphasizing the quality of tourist experience of a group who has historically been denied access to tourism – people with disabilities.

At the Geotourism Challenge an expanded project is proposed. The Centers of Excellence in Inclusive Tourism Project will bring to scale sustainable inclusive tourism development projects piloted in Asia and the Americas. The project goal is to make the tourism industry an authentic partner in the aspirations, rights, and culture of the disability community by establishing local collaboratives, directed by people with disabilities, to provide tourism product creation, infrastructure design, and destination development services to the tourism and hospitality industry. Matching the profit motive of industry to the pent-up demand for travel opportunities among people with disabilities will be the purpose of three Centers of Excellence in Inclusive Tourism currently under consideration for funding and launch in September 2008. People with disabilities of the USA alone spend $13.6 billion annually on travel. Tourist destinations recognize the market advantage they gain by accommodating this travel sector. One of the world’s largest industries, tourism, can create lasting social change for one of the world’s fastest growing underserved populations, people with disabilities – including aging Baby Boomers and their parents.

Discussion of the Centers of Excellence in Inclusive Tourism proposal is drawing worldwide participation at – http://www.changemakers.net/en-us/node/5952

The Geotourism Challenge is Changemakers’ 15th collaborative competition and draws on Ashoka’s 27 years of experience in identifying leading social entrepreneurs around the world. To date, the competitions have sourced more than 2,000 local innovations on various themes from more than 125 countries. The Rolling Rains Report is honored to be recognized as a leader in the global movement to create social change through the tourism sector and the foremost voice for Inclusive Tourism and Inclusive Destination Development.

Anyone can participate and comment on entries. Everyone is invited to improve all entries through online collaboration. A panel of expert judges will choose approximately a dozen finalists who demonstrate innovation, social impact and sustainability. Judges include: Keith Bellows, VP, National Geographic Society, Editor-in-Chief, NG Traveler; Susan Berresford Past President, The Ford Foundation; Leonard Cordiner, CEO, whl travel; and Nachiket Mor, President, ICICI Foundation for Inclusive Growth.

The finalists will have the opportunity to present their innovations at The Geotourism Challenge Summit this fall. Three winners will be chosen by online voting and receive $5,000 each.

###

About National Geographic Society

The National Geographic Society is one of the world’s largest nonprofit scientific and educational organizations. Founded in 1888 to “increase and diffuse geographic knowledge,” the Society works to inspire people to care about the planet. It reaches more than 300 million people worldwide each month through its official journal, National Geographic, and other magazines; National Geographic Channel; television documentaries; music; radio; films; books; DVDs; maps; school publishing programs; interactive media; and merchandise. National Geographic has funded more than 8,800 scientific research projects and supports an education program combating geographic illiteracy. For more information, visit www.nationalgeographic.com or visit the Web page for the Center for Sustainable Destinations at www.nationalgeographic.com/travel/sustainable/.

About Ashoka’s Changemakers

Changemakers is building the world’s first global online “open source” community that competes to surface the best social solutions to the world’s most pressing issues. Changemakers focuses on thematic, collaborative competitions, inviting innovators from around the world to profile and collaborate with a global community of investors, thought leaders and enthusiasts. To date Changemakers has launched 14 successful collaborative competitions and attracted more than 2,000 high-impact solutions from more than 125 countries. Changemakers builds on Ashoka’s 27-year history identifying and selecting leading social entrepreneurs and its belief in “Everyone a Changemaker” global society. Get involved. Find out more about how to nominate, enter, comment and vote in our collaborative competitions at www.changemakers.net

For more information please contact:

Delyse Sylvester

Director of Communication

Ashoka’s Changemakers

250-551-0570

dsylvester@ashoka.org

About Scott Rains and the Rolling Rains Report

Dr. Scott Rains writes daily on travel and issues in the tourism industry of interest to people with disabilities.

His work appears online at http://www.RollingRains.com and http://withtv.typepad.com/weblog/travel/ . Rains’ articles have also appeared in New Mobility, Emerging Horizons, Contours, Design for All India, Accessible Portugal, Audacity, Travel and Transitions, eTur Brazil, Co-Walking Korea, Turismo Polibea, Current Rehabilitation, [with]TV, and Disaboom among others. For his research on the topic of Universal Design and the travel and hospitality industry he was appointed as Resident Scholar at the Center for Cultural Studies of the University of California Santa Cruz (2004-05)

For more information please contact:

Dr. Scott Rains

1748 Dalton Place

San Jose, CA 95124

408 267-4741

srains AT oco DOT net

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The Globalization of Disability Rights: How Tourism Fits In

March 14th, 2008

Culture in the Further Development of Universal Design

Scott Rains, D. Min

srains AT oco DOT net

By now most readers of Design for All India have a healthy grasp of Universal Design. Many, perhaps most, have become highly competent in its application as is evident from the articles appearing in past volumes and today. Beyond technical mastery of the Seven Principles, knowledge of best-of-breed solutions, and familiarity with allied concepts such as Visitability, Adaptive Technology, or anthropometrics there is a cultural component to this design approach that is unquantifiably – but undeniably – transforming Universal Design. By systematically and thoroughly examining this cultural component in the coming decade we will discover the true nature of Universal Design to be social sustainability.

Defining the Cultural Component

There are two ways to define this cultural component.

The first is to take the generally accepted meaning of culture as a social system involving ethnicity, nationality, language, arts, shared values or some combination of these elements to define a coherent and dynamic system. The second is to apply the term culture to that system in relationship to persons with disabilities as a whole (pan-disability culture) or as various sub-groups (blind, deaf, deaf-blind, spinal cord injured, post-polio cultures).

Research into response to Universal Design in this first domain is still in its infancy. A rich body of literature will result from future inquiries into adoption, rejection, and adaptation of Universal Design by cultures as they have been traditionally defined. Such study can provide a complementary approach to other inquiries into disability in the field of Disability Studies.

Historically Universal Design arose in the 1970’s as a product of the Disability Rights Movement in the United States. Closely associated with the work and teaching of North Carolina architect and quadriplegic Ron Mace it began to gain widespread acceptance in the 1990’s through a dissemination process that has not been well documented. One theme in that documentation will be the interplay between the cultural values embedded in Universal Design, either intentionally or unintentionally, and those held in locations where it is introduced.

Anecdotal evidence indicates integration of Universal Design in Japan’s Mitsubishi, Toto, NTT DoCoMo and a uniquely Korean appropriation of Universal Design at Samsung. Reference to the Tao and the principle of balance symbolized in Tae Kuk are being integrated into the approach as applied to product design by the latter. Research by Thai scholar Antika Sawadsri (2006) on affective responses to Universal Design in Tai domestic settings is the first of what ought to be a series of similar studies done around the world. Such a micro-scale look at cultural factors involved in receptivity to Universal Design will provide uniquely targeted guidance to social planners and businesses attempting macro-scale Universal Design projects in the same social conditions.

As successful application and adaptive enculturation of Universal Design occurs there will be impact beyond the predictable further inclusion of persons with disabilities into the economic mainstream. From the earliest conversations leading to what we now know as Universal Design pioneer Elaine Ostroff was involved in the arts and incorporating Universal Design. Other positive secondary effects of adoption will include the importation and fabrication of new materials, dissemination of new designs and new construction methods, and the economic enhancement of those able to consult, design, or build according to a culturally appropriate but inclusive norm as populations age. In areas where an age-inversion causes the numbers of elderly to exceed those of youth, adoption of enculturated Universal Design in infrastructure, products, and services will become necessary not only for social cohesion but as a user demand due to the natural conservatism common with aging.

Defining Universal Design

In order to pursue this research priority and ensure meaningful and generalizable results it is important that researchers share a common definition of Universal Design. That definition is found in the Seven Principles of Universal Design but requires ongoing attention to evolving definitions of disability and to local permutations of Universal Design such as Design for All.

The Principles of Universal Design are:
1. Equitable Use: The design does not disadvantage or stigmatize any group of users.

2. Flexibility in Use: The design accommodates a wide range of individual preferences and abilities.

3. Simple, Intuitive Use: Use of the design is easy to understand, regardless of the user’s experience, knowledge, language skills, or current concentration level.

4. Perceptible Information: The design communicates necessary information effectively to the user, regardless of ambient conditions or the user’s sensory abilities.

5. Tolerance for Error: The design minimizes hazards and the adverse consequences of accidental or unintended actions.

6. Low Physical Effort: The design can be used efficiently and comfortably, and with a minimum of fatigue.

7. Size and Space for Approach & Use: Appropriate size and space is provided for approach, reach, manipulation, and use, regardless of the user’s body size, posture, or mobility.[1]

Adaptive Environments describes Universal Design as:

Universal Design is a framework for the design of places, things, information, communication and policy to be usable by the widest range of people operating in the widest range of situations without special or separate design. Most simply, Universal Design is human-centered design of everything with everyone in mind.

Universal Design is also called Inclusive Design, Design-for-All and Lifespan Design. It is not a design style but an orientation to any design process that starts with a responsibility to the experience of the user.

Current trends are toward a functional rather than a medical diagnostic approach to defining disability. The World Health Organization (WHO) reinforces that with its International Classification of Functioning, Disability and Health (ICF 2001). This aligns well with the third of the three theoretical models of disability – Charity, Medical, and Social (or “Social Interpretation” see Gabel, “Disability Studies in Education”[2].) The latter defines disability as an interaction between function and environment.

Rudiger Leidner of NATKO made a distinction between US conceptualizations of Universal Design and a European reformulation known as Design for All in his 2006 presentation “Tourism Accessible for All in Europe“:

“…the main difference between the D[esign] F[or] A[all] idea and similar approaches such as “Universal Design” is that the targeted users should be involved in the process of product development.”[3]

The designation as Lifespan Design referred to in the citation from Adaptive Environments above captures the observation that human functionality changes through the natural course of maturation and aging. It reminds designers that the value of a product is not the only its durability through time. Predictable changes in the functional abilities of the user may prove to be more important measures of value. Large-scale changes in the ratio between the young and the old are poised to be socially disruptive in ways that immediate adoption of Universal Design can mitigate.

Studies to determine the culturally contextual rationales for accepting Universal Design will become increasingly essential. Already the narrative behind Universal Design projects for seniors or for people with disabilities differs. Public perception of the social value of publicly-funded Universal Design projects takes on added importance in times of scarcity of public resources.

The aging segment of the population appears to figure more heavily than the disability community in Japan’s adoption of Universal Design. While in the US arguably the strongest non-governmental promoter of Universal Design, the non-profit AARP through its Home Design resources, conferences, and workshops educates on the concept without reference to its origins in the Disability Rights Movement or its foundation in disability culture. This appears to be a deliberate marketing strategy to present only images of “healthy” attractive seniors.

These and other examples serve to alert us to the reality that Universal Design applied to infrastructure may equally benefit both seniors and people with disabilities while the political discourse attached to such projects may work to drive a wedge between two groups with common interests and needs.

Culture(s) of Disability

Disability culture or disability cultures offer a second window of inquiry into the meaning and maturation of Universal Design as a global phenomenon.

Some have theorized that while definitions of disability have been imposed by non-disabled persons cultures of disability have risen up to protect the interests, identities, and political voice of those gathered into these categories. Current understandings emphasizing the multiplicity of social categories any individual is involved in and the multifaceted interactive nature of resistance to social movements’ demands for change provide a fluid definition of culture and energize artistic production with a disability “voice.” Colin Barnes and Geoff Mercer provide an overview of the topic in Chapter 21 of the Handbook of Disability Studies entitled “Disability Culture.”[4]

Defining, distinguishing, and uniting disability cultures remains problematic. One can list examples of distinctiveness: deaf culture maintains its own languages, blind culture it own institutions, and mobility impaired culture its own politics.

Conflicts arise when specific design solutions are confused with Universal Design itself.

The usefulness of curbs at corners for orienting blind pedestrians and the necessity of curb cuts for wheelchairs lead some to question the “universality” of some solutions commonly associated with Universal Design. It is important to recall that Universal Design is a design approach not a catalog of solutions or any specific construct such as a ramp or a flashing fire alarm. Universal Design understood as design and not a canon of prescribed solutions is capable of generating outcomes that address the unique needs disability groups with differing functional abilities.

The questions arise for professionals, “Who is responsible for maintaining that clarity of definition at the academic level? At the level of professional discourse? When working with stakeholders and clients?”

Language is a knowledge management system. Careful use of language is called for to both adequately communicate the process of Universal Design and to facilitate competing cultural values existing even within the disability community.

The “Culture” of Construction

The phrase “construction of culture” is commonplace in post-modernist discussions of the nature of culture. Similarly the “construction of disability” is a phrase indicating the social, and thus changeable, nature of the concept and social system known as disability. In such dialogue “avoiding the (re)construction of disability” is a responsibility of those who claim to be working in the interest of social inclusion such as practitioners of Universal Design. Part of that responsibility is to avoid design that stigmatizes.

There are also professional mandates upon those who work with designers in the fabrication phase of products and spaces. We might designate these as part of a “culture of construction” that seeks to resolve all discussion to specifications and measurements that are actionable within their domain of responsibility. The influence of this approach can also manifest from within the disability community.

Examples include accessibility auditor trainings that do not include an introduction to Universal Design principles or to the process and place of design in project development. The results are then evident in accessibility auditing survey tools that proscribe rather than describe. Mandated minimum accessibility standards from building codes are fashioned into check sheets or other proscriptive heuristics for gathering data. This data is then published in directories of building accessibility. The tools are thus unable to capture innovative (universally designed) solutions and the auditors unprepared to recognize them as good design. This self-defeating approach rewards businesses for mere minimum compliance and penalizes those who solve design problems in novel ways.

One museum designer reported a usability study of one of her projects conducted by persons with disabilities[5]. They immediately flagged the lack of the typical (stigmatizing) artifacts of “accessibility”: grab bars and tactile navigation in colors, materials, and textures that broke the integrity of the design of the space, Braille captioning that was easily located visually, etc. After an orientation with the designer they agreed that the design’s non-traditional integration of handholds, navigation aids, and placement of Braille were superior as well as non-stigmatizing.

The auditors working from an internalized list of “accessibility features” had themselves failed to realize that the designer had achieved both accessibility and avoided reconstructing disability through stigmatized solutions. It must be remembered that even stakeholders with disabilities may need training in the tools such as Universal Design that are available to designers.

The Travel and Hospitality Industry as Locus of Transformation

The travel and hospitality industry will be the site of the next major developments in Universal Design.

A typical legislated strategy for social inclusion employs the language of rights. It mandates access to government properties and services in the name of citizenship, human, or civil rights. It extends the argument to the business sector and mandates compliance through threat of sanction.

Such a strategy is sound and within the purview of government. Yet it is not sufficient.

Persons with disabilities in numerous countries report accessibility requirements that conflict within the same jurisdiction, corruption that allows regulations to be ignored, and a general failure on the part of those regulated to imagine any accommodation beyond the mandated minimum.

A parallel approach is to use the industry’s profit motive to achieve accessibility, employment, & attitude change for the benefit of the disability community.

Aside from metropolitan transit and national rail systems the infrastructure of transportation and lodging – of tourism – is under private ownership. In the language of private business the laws protecting the rights of people with disabilities place them in the category of cost center or as legal risks of lawsuits to be managed. While establishing a necessary legal baseline against discrimination such laws evoke a resistance response that, in practice, prevents business from imagining people with disabilities as a lucrative customer base.

Over the past several years the disability community has had some success gaining the attention of the tourism industry with research such as that done by the Open Doors Organization that US travelers with disabilities alone spend an average of $13.6 billion annually on travel.[6]

During this period I have been researching, refining, and promoting a reconciliation of these two approaches to social change where legislative scaffolding sustains the market for profit-based incentive. While some countries may never adopt national civil rights legislation for people with disabilities, approval of the UN Declaration on the Rights of People with Disabilities will radically change the business and legislative ecosystems and raise expectations in the disability community. Tourism remains largely unprepared for the future impact of this UN document. As a global industry that is increasingly being held accountable to social responsibility metrics such as the inverse of Universal Design – Green Design[7] – tourism may become more receptive than governments themselves to accommodating persons with disabilities.

I have proposed to the Echoing Green Foundation the creation of a series of strategically located Centers of Excellence promoting Universal Design within the travel and hospitality industry. We call this application of Universal Design to tourism Inclusive Tourism and Inclusive Destination Development.[8]

Each Center of Excellence will work to standardize the diversity of accessibility laws, disseminate accessibility guidelines for hotels, train travel & hospitality industry staff, and promote the education and hiring of persons with disabilities in the industry. At the local level we will increase accessibility of the tourist destinations hosting the Centers and train a core of persons with disabilities as self-sustaining regional experts in Inclusive Tourism.

Expected outcomes include increased tourism infrastructure accessibility (hotels, airports, and transit systems), greater self-reported social inclusion of people with disabilities and disabled peoples’ organizations (DPOs) (i.e. people with disabilities hired in the industry and DPOs contracted as travel industry suppliers), as well as people with disabilities positively portrayed as valued customers marketing by the industry.

This project will engage industry’s self-interest in profit by recruiting and training an overlooked workforce, product development for this under-served market, best practices dissemination to an awakening industry, and marketing a new image of disability completing a feedback loop that encourages more in the disability community to travel.

Conclusion

Cultural factors influence the adoption of projects involving Universal Design as well as the development of the approach itself. These cultural factors include social groupings traditionally understood as cultures. They also include the communities of persons with disabilities as an aggregate and as sub-cultures differentiated by disability.

Universal Design, as a product of disability culture, represents an authentic voice of disability culture when understood as a design process and not a catalog of sanctioned and static design solution or “accessibility features.”

Yet as a voice competing among other social systems and cultures Universal Design must be clearly articulated and intentionally directed.

One area of promise for shaping the Universal Design of the future is in dialogue with the cultures into which it is introduced. One vehicle for animating such a dialogue is the global travel and hospitality industry operating out of the profit, in addition to the rights and entitlement, motive. A network of Centers of Excellence of Inclusive Tourism and Inclusive Destination Development offers a scalable and sustainable mechanism for the continued development of Universal Design as an authentic voice of the disability community worldwide.

– 30 –

 

 

Dr. Scott Rains writes daily on travel and issues in the tourism industry of interest to people with disabilities. His work appears online at www.RollingRains.com and http://withtv.typepad.com/weblog/travel/ . Rains’ articles have also appeared in New Mobility, Emerging Horizons, Contours, Accessible Portugal, Audacity, Travel and Transitions, eTur Brazil, Turismo Polibea, [with]TV, and Disaboom among others.

For his research on the topic of Universal Design and the travel and hospitality industry he was appointed as Resident Scholar at the Center for Cultural Studies of the University of California Santa Cruz (2004-05).

He is active as a consultant and speaker.


[1] Compiled by advocates of Universal Design in 1997. Participants are listed in alphabetical order: Bettye Rose Connell, Mike Jones, Ron Mace, Jim Mueller, Abir Mullick, Elaine Ostroff, Jon Sanford, Ed Steinfeld, Molly Story, Gregg Vanderheiden. The Principles are copyrighted to the Center for Universal Design, School of Design, State University of North Carolina at Raleigh [USA].The Principles established a valuable language for explaining the characteristics of Universal Design. They are in common use around the world, sometimes with slight modifications, primarily one or two principles grouped together. Source: Adaptive Environments

[2] One hallmark of disability studies is its adherence to what has been called a “social model of disability” (Abberley, 1987), first suggested by Vic Finkelstein (1980) and other disability rights activists, in which disability is understood as a form of oppression. Although “social model” is the most common usage of the concept, I agree with Vic Finkelstein (2001, ¶. 2) that the phrase “social interpretation” is a better and more inclusive representation of disability studies standpoints. In this paper, I use “social model” to refer to the traditional historical-materialist version of the social interpretation of disability. In contrast, I use “social interpretation” to refer to the wider array of disability theories in disability studies (e.g., disability identity, disability embodiment, disability discourse). As a whole, social interpretations of disability contrast with typical educational views wherein “disability” represents innate individual deficits. In disability studies, the disability-as-deficit notion is referred to as a clinical or medical model and is rejected as the basis for understanding the lived experiences of disabled people because it tends to pathologize difference and rely upon expert knowledge (i.e., physicians, special educators, rehabilitation counselors) to “remediate” difference (Society for Disability Studies, Guidelines for Disability Studies, ¶ 3). Disability Studies in Education: Readings in Theory and Method (2005, New York: Peter Lang) Source: http://www.nl.edu/dse/SusanGabel.htm

[3] Source: http://www.rollingrains.com/archives/Tourism_for_all_in_Europe_Leidner_2006.pdf

[4] Handbook of Disability Studies, Gary L. Albrecht, Katherine D. Seelman, Michael Bury, 2001 Sage Publications , ISBN 076192874X

[5] Personal communication, 2004

[6] Open Doors Organization, 2005

[7] It [Universal Design] has a parallel in the green design movement that also offers a framework for design problem solving based on the core value of environmental responsibility. Universal Design and green design are comfortably two sides of the same coin but at different evolutionary stages. Green design focuses on environmental sustainability, Universal Design on social sustainability. Source: http://www.adaptiveenvironments.org/index.php?Itemid=3&option=Content

[8] Sources: http://www.suite101.com/article.cfm/travel_with_disabilities/114773 and http://www.suite101.com/article.cfm/travel_with_disabilities/115176

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Inclusive Tourism: A New Strategic Alliance for the Disability Rights Movement

December 1st, 2007

Below is the text of the opening keynote of Presentation to ICAT 2007 held at the UN in Bangkok, Thailand. My appreciation to the various ministries of the Thai government, UNESCAP, and several disabled peoples’ organizations (DPOs) including Disabled Peoples International – Asia Pacific (DPI-AP) and the Asia Pacific Disability Forum (APDF).

<strong>Dedication</strong>

Before I begin I would like to dedicate my comments today to my friend Topong Kulkanchit. I met Topong in 2005. We decided to work together to see that a conference was held in 2007. Mostly through his hard work early preparations were made so that Saowalak Thongkuay and Sawang Srisom their team could make this event a success. Thank you. I look forward to our next gathering in Singapore in 2009. I challenge everyone here to continue the work that Topong poured his life into.

<strong> Inclusive Tourism: A New Strategic Alliance for the Disability Rights Movement</strong>
by Dr. Scott Rains
srains at oco dot net
<strong>
Models of Disability</strong>

We are here to do some thinking on a global scale. That’s a big task.

Big thinkers like to give names to the boundaries they put around ideas – handles to make them easier to grasp. When we talk about disability we usually talk about these “idea packages” as models of disability. The Charity Model, the Medical Model, and the Social Model are the names we usually use.

The first two present people with disabilities as recipients rather than as sources of action. The Charity Model places people with disabilities as recipients of the moral responsibility of others to care for them. The Medical Model further limits responsibility to those with professional medical knowledge. Both models define the limits of the world that a person with a disability “really” belongs to: The world of family or its extensions of church or service organizations in the Charity Model and the world of the doctor or their delegate in the Medical Model on the assumption that the disabled person’s highest and constant concern in life is to be “cured.” Both models prevent people with disabilities from political expression and economic participation as adults because both models assume worlds that are too small for real people.

After an introduction like that it is obvious that I am going to endorse the Social Model. It claims that the world where people with disabilities “really” belong is the real world, the whole world – like everybody else! That’s a big world.

Universal Design is what lets us live at home in this world. Wheelchair user and architect Ron Mace, with his colleagues, set the foundation for everything we do at this conference by creating Universal Design more than 30 years ago. These thinkers in the Disability Rights Movement understood that our desire to be full participants in society required us to develop a simple elegant solution to achieve accessibility.

The seven principles defining Universal Design start from the reality that not every individual has the same stature, strength, or range of abilities. Diversity between individuals is the “normal” in any collection of human beings – change in ability is the defining characteristic of each individual over time. Accessibility in tourism improves quality for the growing senior population too. Universal Design is a framework for the design of places, things, information, communication and policy to be usable by the widest range of people operating in the widest range of situations without special or separate design. Most simply, Universal Design is human-centered design of everything with everyone in mind.

<strong>Trend 1: Creation of a Market</strong>

I said we’re here to think but to be more complete I should add that we’re here also to dream. Imagination becomes alive in every person’s life when the limits of their world go from family to some larger institution and finally on to the limitlessness of free participation in the whole world. Dreaming is the first step in thinking on that global scale – and everyone who works in the global travel industry knows what we do. We sell dreams and we make them real. As the disability community around the world acts on this dream of global participation the travel industry is here providing for them as what they have become – a market.

I have been invited here to talk about global trends in accessible travel. I have just told you the first trend. A group of people with disabilities have gathered. They are the actors. They are the political and economic force. They, we, came here to say that we have a dream. That dream is the freedom to travel. They have become a market and they have their own voice.

As we gather for two days in Asia another group of people from all over Europe are going home. They have just finished two days of meeting on accessible travel at the European Network for Accessible Tourism – ENAT run by Ivor Ambrose. This trend – this dream – is global among people with disabilities.

Now let’s think together.

<strong>
Trend Two: The Rights-Based and Profit-Based Approach to Disability</strong>

the second trend we see is that a “profit-based approach to disability” is inseparable from our conference theme of “a rights-based approach to disability.” Aiko Akiyama of UNESCAP will speak to us later about the Biwako Millennium Goals where rights and development converge in tourism. Is there a profit-based approach to disability for the travel industry?

Research done by Eric Lipp and Laurel van Horn of the Open Doors Organization have taught us that American adults with disabilities or reduced mobility currently spend an average of $13.6 billion U.S. a year on tourism. In 2002, these individuals made 32 million trips and spent $4.2 billion on hotels, $3.3 billion on airline tickets, and $2.7 billion on food and beverages while traveling.

In the UK 10 million adults with disabilities have an annual purchasing power of 80 billion pounds sterling. In 2001 economically active Canadians with disabilities had $25 billion Canadian dollars available. Americans with disabilities or reduced mobility have $175 billion in purchasing/consumer power.

Cruise lines know from research that people with disabilities favor cruise vacations at 12% compared to 8% of the general population. Studies also show that people with disabilities are loyal customers: 59% report that they plan to take another cruise. Creating accessible cruise ships, accessible ship terminals, accessible ground transportation, and accessible tourist destinations in port cities is not charity. It is good business! In a few minutes I will tell you how stakeholders in North & South America are working together to build that business.

<strong>Trend Three: Standardization in the Years Ahead</strong>

Two years ago a group of us got together in Taipei and began to plan for today. Then it was easy to report on trends in accessible tourism. The pattern was clear. The trend in 2005 was experimentation and local standardization in controlled regional environments.

New “islands of innovation” were evident around the world. In fact, in most cases they were either actual islands like Crete, Hawai’i, Tenerife, Japan, St. John’s Virgin Islands, and Tasmania or they were geographically isolated regions like Western Australia.

The trend in 2007 is less about new invention and more about standardization across larger areas and on an international level. It is a new stage of maturity but it will be over in about two years when we meet next in Singapore – this time with our European friends. For these next two years the main trend around the world will continue to be establishing common practices and agreeing on standards.

Sometimes it will feel like a tug-of-war; pulling in two opposite directions: one direction pulls toward a rights-based approach to standards and the other a profit-based approach. The first starts with persons with disabilities as citizens; the second as customers. The first approach speaks in the language of governments; the second the language of business. Effective standards result when people with disabilities are active in defining both approaches.

In fact, that is what this organization is about. It is a voice of people with disabilities in conversation with government and business to serve the interests of all three groups regarding travel and hospitality.

Let me anticipate 2009 with a grandiose statement about the historic importance of today: The tourism industry has become a vehicle for social good. Industry practices increasingly honor green design and ecologically responsible practices. With Universal Design tourism has also become a vehicle for what the Disability Rights Movement has fought so hard to articulate and to achieve for more than 30 years. So here today we set the Disability Rights Movement on a new path accompanied by partners from business and government. That path of promoting accessible travel will pass through every country in Asia.

The trend when we meet again in Singapore in 2009, this time with our colleagues in ENAT from Europe, will be the emergence of Centers of Excellence that strategically disseminate sustainable innovations, grounded in standards, and fluent in customer service respecting the rights and dignity of people with disabilities.

After ICAT 2007 I will spend time consulting with government and industry leaders in Pattaya to see if we can make Thailand one of the first of those Centers. I will assist UNESCAP create a set of guidelines

From my work around the world I have three cases that illustrate the current trend toward creating standards of good practice: one example in South America, one in North America, and one in Africa. South America brings four countries together with the cruise industry around accessibility. North American national park officials draw in a business partner and showcase accessible cultural tourism. Africa is shaping a continental accessible tourism market through the research and advocacy of an entrepreneur with a disability who promotes safaris.

<strong>Three Cases

Example 1: South America</strong>

The Inter-American Institute on Disability and Inclusive Development has formed a network to develop accessibility along the cruise corridor from northern Brazil to Tierra del Fuego at the southern tip of Argentina. In 2007 disability advocates and organizations, government, academics, cruise lines, and the land-based tourism industry joined together as stakeholders to begin to adopt standards, infrastructures, and practices that guarantee a consistent quality of travel experience between Brazil, Uruguay, and Argentina for seniors and others with disabilities. The major activity at this stage is in Brazil which will host an international conference on Accessible Tourism in May 2008.

Individuals in the South American network have begun to appear in the media, speak at tourism conferences, and write articles on the value of this market of travelers with disabilities. Data is being collected on the number of people with disabilities and their purchasing power. One of the most rewarding things I do now is work with university students and young professionals in South America guiding their research, their career choices, and their businesses.

At the same time accomplished architects like Veronica Camisão are drawing up plans for improved ship terminals. Wheelchair-using Brazilian architect Silvana Cambiaghi has published Brazil’s first full-length book on Universal Design. Museum specialists like Viviane Panelli Sarraf simultaneously provide attractions of interest to international and domestic tourists with disabilities by making museums and other cultural sites accessible. Dada Morreira, Ricardo Shimosakai, and others with disabilities sell accessible land-based excursions that include whitewater rafting, jungle off-road treks, multi-sensory walks, parasailing, and exhilarating treetop tours. In addition to this explosion of new businesses by people with disabilities, this group has written new regulation on maritime access to standardize accessibility in cruise ship terminals and on passenger ships serving Brazil. Industry and government, led by professionals, advocates, and business owners with disabilities have identified an underserved market and are building a strategy together to serve it.

Research shows that the more cruises a person takes the more likely he or she is to disembark in port and buy a land-based excursion. We know that more people with disabilities are cruising. We also know that they tend to take repeat cruises more often than the general public. They will grow disproportionately as a market inclined to take land excursions. Argentina has planned ahead for this trend. It is holding its first rural workshop on serving people with disabilities for the rural tourism industry that will see some of these cruise passengers on land excursions. Keep in mind that disability accompanies aging. The Open Doors Organization recorded that about 50% more of the existing group of Americans traveled between their 2002 and 2005 studies – even though it the travel industry had not done anything to make it significantly easier to do so. That group of people with disabilities and the leisure to travel is about to expand as the huge post-WWII generation ages. This market is big and travelers will reward those who build welcoming environments to accommodate them.

Take the example of the United States.

<strong>Example 2: North America</strong>

In the United States this global trend toward standardization on best practices by government, industry, and people with disabilities takes place on Alcatraz Island. Many people know this steep rocky island near from San Francisco from movies about its time as a maximum security prison. As the saying goes, “Break the rules and you go to prison. Break the prison rules and you go to Alcatraz.”

Today the island is a National Park run by some of the most passionate supporters of disability rights in the US Park Service. Early in November I had the opportunity to inspect the island with the National Accessibility Center from Indiana University. The park is a model for the entire world and continuously hosts international park and government officials. The practices used at Alcatraz are further disseminated because one out of four visitors comes from outside the US and brings their experience home.

The message of accessible tourism is not only coming from conference like our or ENAT in Europe or the one this May in Brazil. Every day people from Asia are seeing accessibility in action at Alcatraz.

Physical access for the mobility impaired was one of the first barriers to be addressed on the island. More than a decade ago National Park Rangers, including James Adams and Rich Weiderman, invented a tram system for the island that anticipated current trends calling for green and sustainable development in tourism. Using an electric motor designed for the tractors that pull jet airliners at airports they applied Universal Design principles to manufacture this uniquely powerful but non-polluting tram. It was estimated that it would serve 15,000 park visitors in its first year. Everyone was surprised to find that 30,000 used it. Today it averages 70,000 to 80,000 users annually. Keep in mind that about 25% of these users are people who bring the expectation of such accessible and eco-sensitive service back to their home park systems.

The island can only be reached by boat and only one company, Alcatraz Cruises, serves the island. Early in their contract the cruise line saw that they needed to invent a new type of dock and ramp system. Doing so made them the only cruise facility on the West Coast of the USA able to accommodate passengers 365 days a year in all extremes of weather and tides. I, for example, had no difficulty getting off the island the day 580,000 gallons of tanker fuel spilled in the Bay near the island and the park was systematically being shut down for the emergency.

Standardizing on the dock design and evacuation practices perfected at Alcatraz National Park disseminates good physical design and safety policy. It also affirms a profitable collaboration between business and government where innovation to achieve accessibility resulted in better service for those with no disability.

Program accessibility, or accessibility to all the services and benefits offered by the park beyond simple physical access, is another area where Alcatraz first set the standard and then became the living university teaching by example. Alcatraz was the first park to adopt audio walking tours narrated in the first person voices of rangers, former prisoners, and guards. The approach was so successful that the tiny recording company that produced the first tours became the largest in the world in that field and was just recently purchased by a television channel. Once again, accessibility proved to be profitable and trend-setting.

<strong>Example 3: Africa</strong>

The final example, Africa, represents something different. One of Africa’s most popular forms of tourism is the safari. It operates in isolated areas. That isolation means the safari industry has less structure for formalizing best practices. In this case, the significant current trend is the result of the vision of a European entrepreneur who, with a vision and his sturdy wheelchair, has just completed visits to over 130 hotels and tourism destinations throughout the continent. Gordon Rattray runs Able Travel. On his research tours he is able to spread standards through his individual consultations.

Here neither government nor industry are in the lead. Leadership comes from within the disability community itself. The end result of Gordon’s accessibility audits throughout Africa will be a published tour guide, “African Safaris for People with Limited Mobility”. In that way his work promotes adoption of standard practices much as US author Candy Harrington does through her magazine Emerging Horizons and her various books, “101 Accessible Vacations,” “There is Room at the Inn,” and “Barrier-Free Travels.” Bruce Cameron has taken a similar approach to standards promotion through his book “Easy Access Australia” and frequently contributes to academic and policy work with Australian academics like Dr. Simon Darcy and Dr. Tanya Packer. Mary Chen in Malaysia will launch the disability lifestyle magazine, Challenges, in Malaysia in January where I will write on travel. I have been asked to edit a special issue on travel and disability for the academic journal, Review of Disability Studies published by the University of Hawaii. Dr. Sunil Bhatia has also invited academics to contribute articles specifically about Thailand to the journal of the Design for All Institute of India. I invite any of you here today who would like to submit an article or discuss an idea for an article to talk to me during the conference.

Gordon Rattray’s work in Africa is a “profit-based approach to disability” where he establishes himself, a person with a disability, as the expert on an entire continent. As an individual consultant he brokers and disseminates standards in a region where only a sparse business and social network serves the accessible tourism market. In contrast, the Inter-American Institute on Disability and Inclusive Development takes a “rights-based approach to disability.”

South America is a heavily networked environment that produced the important accessible tourism document in 2004 known as the Rio Charter: Universal Design for Sustainable and Inclusive Development. It is further linked by a flourishing route of cruise ship destinations sharing similar needs. The orientation to disability rights of the Institute emphasizes the experience of the organization’s founder, Rosangela Berman-Bieler, who worked with Judy Heumann to establish the Disability & Development program of the World Bank. Both women are wheelchair users and professionals in international development.

In the United States with Alcatraz National Park we see yet another model. Here the key professionals working in the National Park System and the contracted cruise line do not have disabilities themselves. There has been a systemic adoption of disability rights values by this government agency and this business — although only through the sustained pressure of these professionals from within and sometimes with the addition of pressure such as lawsuits from without. Here professionals lacking disabilities guide the institutions through their own sense of justice, legal obligation, and business opportunity. As a prominent international tourism destination what they have created becomes a school of Accessible Tourism for any visitor who cares to learn from it.

Tourism ministries, and the industry they support, have begun to apply results from studies about our travel behavior and purchasing power. Facility construction and business practices based on Universal Design that were once considered innovations and were known only locally are now better known and adopted worldwide. There is increasing consensus on what are proper – and profitable – ways to attract us as a market. The fact that this conference takes place today through the generous sponsorship of the Thai government with support from the tourism industry is one world-class demonstration that thoughtful leadership has recognized the value of the full participation of all its citizens and how concrete action to include citizens with disabilities creates the environment of hospitality that attracts tourists from around the world.

<strong>Review</strong>

Let me end by speaking in sequence to the three groups that will make accessible tourism possible: governments, businesses, and the disability community.

<strong>Government</strong>

Governments, when we promote a rights-based approach to disability we commit ourselves to a tradition that affirms the dignity and worth of every individual human being. We raise the individual beyond the context of the body and its functions or limits; beyond, family, race, or nationality. We state that we support the rule of law and hold our governments accountable for protecting the freedoms that we believe are due to all human beings.

By promoting the UN Declaration on the Rights of Persons with Disabilities we are actually holding more than our own national government to this standard. We are claiming that all governments of all nations must unequivocally promote and protect the right to full social inclusion of all people with disabilities throughout their lifespan. A rights-based approach to tourism claims that there must be equal opportunity of access for people with disabilities allowing them to enjoy the benefits of travel and hospitality whether for business or for leisure. That access must be physical as with the design and construction of buildings or transportation systems. That access must also be to the non-physical benefits available to travelers without disabilities. This could be as simple as receiving the same respect offered to other customers during a transaction. It could be as complex as comprehensively planning safety and evacuation procedures appropriate to people with various sensory, intellectual, and mobility capacities.

<strong>Business</strong>

Businesses, when we promote a profit-based approach to disability we acknowledge that a business must pay attention to its profitability – once it has met the minimum standards set by law and by best practices. We expect to see variation between the products offered by different businesses. We expect to see accessible tourism products both inexpensive and extravagant because our community includes members who can afford both. In fact, we count on businesses to take the lead in innovation. We trust them to do their work so well that, like moths to flame, we will want to experience the products that they have developed to entice us. So let me offer to the industry this cheeky invitation from Jesús Hernández, accessibility director of Spain’s ONCE Foundation, first in its original Spanish:

“<em>No te preocupes de mis derechos, preocúpate de mi cartera</em>”! [Spanish]

“Don’t overly concern yourself about my rights, pay attention to my wallet!”

Businesses do what you do well! We want to spend our money!

Studies show that people with disabilities have that legendary trio of characteristics that all travel agents look for: the desire to travel, the means, to travel, and the freedom to travel. In fact, the study I quoted earlier from the Open Doors Organization predicted that those billions of dollars spent on travel by Americans with disabilities could easily double with the creation of appropriate travel products. Now that’s a bold prediction!

<strong>
People with Disabilities</strong>

People with Disabilities, when we travel we represent more than ourselves because we are part of a community. As a person with a disability you carry two items of unusual value — especially in combination. Both tend to surprise those you meet as you travel. The two items are money and pride. By money I mean more than the change in your pocket. By pride I mean that confident self-determination of knowing who you are beyond any economic measures of worth.

The very fact that you have a disability and travel suggests something about your economic condition. It indicates that you have credit, savings, education, maybe a profession that requires travel. It demonstrates more importantly that you have the ability to make decisions about the course of your life for yourself. That combination of means and dignity are potent tools of social transformation.

Travel the world today and you will find that there is a hunger for community and solidarity among people with disabilities. As an exchange student, backpacker, business or vacation traveler, your identity as a person with a disability gives you access to faces of the tourism industry that others may not have. Some are positive. Some need improvement.

The next two years will be a surprise to those in the industry who have not yet prepared their profit-based approach to disability. Some will be asking you to help. You have an opportunity to contribute and to shape the travel industry. That may be with the rights-based emphasis through government, education, or policy. It may on the profit-based side through invention, construction, marketing, or business creation.

Whatever opportunity you choose, take your pride – and your money – on the road. Travel. Teach the industry and level the path for the ones who come after you!

*************

Scott Rains, D. Min. writes daily on travel and issues of interest to people with disabilities occurring in the tourism industry at <a href=”http://www.RollingRains.com “>www.RollingRains.com </a>His research on the topic of Universal Design and the travel and hospitality industry has included appointment as Resident Scholar at the Center for Cultural Studies of the University of California Santa Cruz (2004-05). He consultants globally on accessible travel & hospitality.

He can be reached at srains at oco dot net

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The Global Reach of InclusiveTourism: IATC 2005 Keynote Address

October 15th, 2007

We discussed Inclusive Tourism within a rights-based framework at Asia’s second international conference promoting Inclusive Tourism in Bangkok November 21-24, 2007. The following was the Opening Keynote for the 2005 International Conference on Accessible Tourism in Taipei, Taiwan.

Below is the text of my opening keynote presentation at the 2005 IIn March of this year Steve Fossett made history when he took off from Salina, Kansas in the USA and flew his airplane, the GlobalFlyer, for 67 hours nonstop in a solo around-the-world flight. I have only one half hour to take you all the way around the world and tell you about accessible tourism. Fasten your seatbelts. This will be a very quick flight!

The story of accessible tourism as a growing part of the tourism industry could begin at many different points. Soon the first history of accessible tourism will be published in the Review of Disability Studies. The authors Laurel van Horn and Jose Isola explain how improvements in medicine have allowed disabled people to live longer; improvements in equipment such as wheelchairs, hearing aids, or computers that speak for us allow us to be more active; entrepreneurs and other risk-takers with disabilities have started travel agencies, sports leagues, and outdoor expeditions expanding our imaginations and challenging us to ever larger goals.

And always, there is the fact that year-by-year the Baby Boomers � who love to travel � become older and more become disabled. They will become the main characters in the next chapter of the history of accessible travel. Even before that, even now, this story about how we got to where we are today is full of enough heroes and villains for me to entertain you for a long time.

But we are taking the quick tour. I will let you read the article for yourselves when we publish it.

For today, let’s start this tour of accessible tourism by looking a moment more at commercial aviation.

The airline industry now has mature airplane technology, well-tested airport design and a very large and growing customer base. It was not always that way.

Taiwan has two international airports served by numerous airlines and receiving thousands of passengers annually. Air links to the world are essential to Taiwan’s economic health. For many people, air travel has become as common as travel by bus, subway, or taxi. This is because the transition from propeller to jet engine airplanes made it possible for these large numbers of people to move across great distances rapidly and in comfort. Comfort may include pressurized cabins with oxygenated air for someone with compromised lungs, attendants to assist with boarding for those unstable on their legs, and space for equipment like a wheelchair or a companion animal for someone who is blind. Unfortunately, sometimes, the airlines are tempted to define comfort so that it serves only the few.

How does an industry innovate to survive once it becomes as large and taken for granted as the airlines? It looks ways to increase income from its current customers and looks to attract new ones.

When businesses realized that they must compete for our business or lose us – that is when the story got interesting to me.

I believe that the travel industry, not governments or social entrepreneurial agencies will make the next revolutionary contribution to the rights of people with disabilities.

The travel industry will become promoters of our human rights because we have spent more than 30 years tirelessly forcing governments to treat us as real human beings and have created social and non-profit agencies to work for us. These laws and educational resources make it possible for something new to happen. The travel industry will find partners in government because tourism by people with disabilities can partially pay for the infrastructure changes needed to treat disabled citizens justly – and meet the coming challenge of our aging populations. The travel industry will do this – and is already doing this – because it can profit from us.

As air travel expanded in the last 15 – 20 years there were also strong movements for the rights of people with disabilities around the world. You probably have all heard of the Americans with Disabilities Act, the ADA. It protects the civil rights of people with disabilities in the USA and allows them to participate freely in society. In the air however it is the Air Carrier Access Act, the ACAA, that regulates the industry and makes accessible tourism possible. In the airport and in hotels it is the ADA Accessibility Guidelines for Buildings and Facilities (ADAAG). These regulations are made concrete through the work of designers like Coco Raynes and researchers like Kate Hunter-Zaworski who evaluates airline seating or Harry Wolfe who advises airport managers on the needs of older travelers. These pioneers use a design philosophy called Universal Design that seeks to include people with the broadest range of capacities and abilities in everything that it built.

So, what history teaches us when we start the story of accessible tourism from the airline industry, is that at a certain point the industry needed new customers. It was pressured by law to allow people with disabilities to become customers and it found technically competent individuals who understood the physical needs of people with disabilities. These technically competent individuals used Universal Design to make human rights real in our day-to-day life. They opened up new parts of the world to travelers with disabilities. Finally, we became treated as customers not patients or obstacles.

Today excellent studies exist on the tourism potential of people with disabilities. Some studies were done by the United Nations UNESCAP, by Keroul of Canada, and by the European Union but it was pioneers like Simon Darcy in Australia and Eric Lipp in the USA who gave tourism professionals the business tools they could use to act – and to make money.

I encourage you to read “From Anxiety to Access” by Simon and the “Travel Behavior Surveys” by Eric. In fact, I would even suggest that someone here today take on the task of translating them into Chinese. I say this, not only because they are historic documents that launched the current phase of accessible tourism, but because we would all like to see similar studies on Taiwan shape the future of accessible travel in the Asia Pacific region.

Eric’s study found that:

The 42 million disabled travelers in the USA take 31.7 million trips per year, and spend $13.6 billion annually. Major areas of spending include $3.3 billion on airfare, $4.2 billion on hotel accommodations, and $2.7 billion on food and beverage. In addition, adults with disabilities patronize restaurants about once a week, and they account for $35 billion in annual revenue for restaurants.

Simon’s study found that:

On average 80-90% of all travel by people with a physical disability is with a partner/caregiver, family or friends who do not have a disability. Of those who undertook travel with other people with a disability most traveled with 1-2 other people with a disability.

That is a lot of people with a lot of money to spend – and those are only consumer numbers from the USA.

It was the ocean cruise ship industry, not the airlines, who first learned how to turn those words into profit. When they created their successful business models they made accessible tourism sustainable. Part of their success came from understanding a simple concept that people with mobility difficulties know as “the path of travel.”

Cruise ships are compact universes. If you can conveniently locate a tourist’s necessities – and guarantee that the tourist can get to them with minimal effort – then you have a formula for success. In other words, do not just make a table in a restaurant accessible. Make a destination, like a restaurant, accessible from every possible starting point in the ship, or resort, or city. Create an accessible “path of travel” to an accessible destination and then you have an accessible product not just one special accessible item. You have a reason for tourists not only to pass through but to stay.

Today, whole regions, states, and countries are learning these simple facts. I want to tell you about some on our quick trip around the world. I hope that you will tell me about many more while we are together here.

To the south of us, Australia takes accessible tourism quite seriously for both domestic and international tourists. The Convention Bureau there in Perth, Western Australia has a program called “Beyond Accessibility.” It requires the hotels to use from 10% to 15% of the profit they make from the conventions brought to them by the Convention Bureau for upgrading the hotel’s accerssibility.

In Australia’s state of Tasmania, the Devil’s Playground does something unique in the entire world with the concept of “paths of travel.” Kerry & Jane Winberg have purchased several properties throughout the seven tourist regions of the island. Each location is fully wheelchair accessible. In addition, they have purchased their own bus with a lift. Thus, any place in the entire state can be visited in a comfortable day trip. As a result, the entire island is open to travelers with disabilities. I traveled around Tasmania as one of their first guests last September. We taught shopkeepers and tourist site managers about the potential of this market and what they could do to improve their appeal to travelers with disabilities. Now, my colleague Neil Robinson is doing an economic feasibility study to see if this model can be applied in Western Australia.

In the Atlantic Ocean, one of the Canary Islands known as Tenerife lies sixty miles off the coast of North Africa. There lives one of the pioneers of the European Tourism for All movement, Jose Ignacio Delgado. His work has strengthened the legal rights of Europeans with disabilities. He has promoted the civil rights and improved access to services for Canary Island residents with disabilities. He consults with the tourism industry and his accessibility directory for Tenerife is a model sophisticated online resource offering tourism information for travelers with disabilities.

Farther north in the Atlantic, the United Kingdom is developing accessible tourism very rapidly since their anti- discrimination act has come into force. One especially well-done project is the online travel agency and accessible destination datable known as the “Good Access Guide” by Richard Thompson. Richard is one of the 92 colleagues from around the world who I asked to help me research this talk and who have contributed to the online discussions we have going in Brazil, Canada, and the United States on the five themes we will discuss in our Breakout Sessions at this conference.

Also at this conference, we will learn about Japan’s leadership in accessible travel. Takayama city is only one example of the way Japan is teaching the rest of the world how to live with a spirit of inclusion. Their unique contribution is to recognize that older citizens benefit from the accessibility that makes a place livable and attractive to tourists with disabilities.

Architects, and their students, from the Rhode Island School of Design take a different approach. They are linking environmentally sensitive -“green” – construction methods and building materials with accessibility. They are creating an accessible eco-lodge at St. John’s in the US Virgin Islands This resort, known as Concordia Estates, allows people with disabilities close access to unspoiled nature.

The tourist hotels in Hawai’i have gone beyond simple compliance with the American with Disabilities Act. They can provide guests with comfortable accessible rooms, advise them on accessible places for food and entertainment, or arrange for things such as a specialized beach wheelchair to rent that will set mobility disabled visitors loose on the beach.

All these tourist destinations have learned the cruise ship secret of success. Disabled tourists will come when they find variety, value, service, and accessibility woven together seamlessly. They are learning to include people with disabilities as free and equal participants in leisure activities.

Now, notice something about these examples. Hawai’i, St. John’s, Japan, te United Kingdom, Tenerife, and Tasmania are all islands. It seems that innovation in accessible tourism, at this point in history, is flourishing in places that are manageably small and administratively unified. Is it possible that an island like Taiwan will become a world-class example of accessible tourism? The fact that we are all gathered here for this conference makes me think that Taiwan plans to become just such a leader.

We have a name for the model that is developing in the areas that I just mentioned. We call it “Inclusive Destination Development.” The phrase combines two other phrases “Inclusive Development” from economic development practice and “Destination Development” from the tourism industry.

The World Bank promotes “Inclusive Development” as economic and regional development that allows for full social participation of people with disabilities.

“Destination Development” is the phrase used by the tourism industry to describe the strategic application of planning, development, and marketing resources to enhance a location as a desired destination for travelers. Inclusive Destination Development uses the word “Inclusive”, in the sense it is used by the World Bank, to mean “allowing for the full social participation of people with disabilities.”

Thus, Inclusive Destination Development is “the systematic and strategic application of resources to make a location become a destination of choice for persons with disabilities.”

The goal of Inclusive Tourism is to accommodate the broadest range of tourists possible without stigma or the need for special accommodation. Inclusive Destination Development is the primary means of establishing Inclusive, or as we will be calling it at this conference, “Accessible” Tourism.

Inclusive Tourism is one important means through which persons with disabilities participate in society at a distance from their homes. At the same time, the presence of these tourists provides a model – and source of funding – for the inclusive practices and infrastructure necessary for these human rights to be extended to local residents. Inclusive Tourism partially funds Inclusive Destination Development. Inclusive Tourism is an example of democratization and the dissemination of human rights through a market-driven mechanism.

Earlier I mentioned the concept “path of travel.” When we design places so that people with disabilities can enter, participate in, and leave freely we also allow access for economic resources and the very concept of freedom.

At this conference we commit ourselves to building the Asian portion of this path. I look forward to building it with you. So do the millions of people around the world who will also come here to travel it.

This presentation also appeared as an article at Suite 101.

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February 27th, 2006

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Rolling into the Mountains of the Slovak Republic

October 5th, 2005

For most of us with Slovak roots, meeting family in Slovakia is like the coming together of two worlds – two lifetimes. It’s like filling a hole in a puzzle.

My puzzle had a few extra pieces. Once I discovered a living relative in Slovakia it took me about two years to arrange the trip. My puzzle includes getting around in a wheelchair. The solution came, oddly enough while I was in Brazil.

I was born among Chicago Slovaks (MAZALAN, JANOTA, KLIMCIK) who worked at Benet’s “Wiretown” Factory in Blue Island as tool and die makers and whose children took up insurance and flooring. Metalwork and floor tiles run for generations through our family story. In Slovakia I learned of chapters involving the Rockefellers importing Mazalan’s proprietary sharpening stones, family stoneworkers repairing the lintels in Trencin Castle, and Oravsky Podzamok’s display of the Mazalan quarry and the family’s master stoneworkers. I also learned that the family property, expropriated under the Communists, is now the seedy Medzibrodie nad Oravou grocery and pub. I laughed to learn that several of my grandfather’s “favorite nephews” never really existed! It turns out that one relative mastered both stoneworking and prevarication. For years he graciously accepted donations of clothing and money from my grandfather to support his fictitious children!

Communist Era Pub on our Expropriated Homesite

Family history is so much better than TV soap operas. And I never would have known any of it without visiting our ancestral villages of Medzibrodie nad Oravou, Bziny, Pribis, and Presov in Orava.

I was born in Chicago but Seattle is home for me. The family moved there when I was young. So, Slovak cultural influence on me, that far from a Slovak enclave, was pretty much limited to Catholicism, paprikosh, and kolachkes. Oh yes, there were the high-spirited music and dancing sessions when we visited Chicago. We’re Gorals after all! Still, I never learned a word of Slovak.

But I did learn Portuguese. In high school and college I was an exchange student in Brazil. To celebrate my 20th wedding anniversary I arranged a return with my wife decades after losing touch with my Brazilian host family. I began an Internet-assisted search for them. Offhandedly, just to master the Internet, I applied my successful search strategies to researching my Slovak roots. I found both families at about the same time. In Rio, amid a festive “family” reunion, I asked about a missing host family member. “Oh, she married an American,” I was told. “He works for the American Consulate – in Bratislava.” Bingo! Suddenly I had more family in Slovakia. By the time I left Rio my calendar showed multiple family reunions throughout Slovakia for the following Easter.

Main Street in Medzibrodie nad Oravou

Easter in Slovakia is a wonderful time for meeting family. Many extended families naturally gather for the season. We fit right into the festivities. Younger people, who frequently speak English, were home from school to translate. In fact, we found several eager to drive us around the country to visit castles, spas, scenic spots, cousins and a whole branch of the family in Nitra that we knew nothing about. Easter rates at hotels and airfare rates are still off-season. Stay for a couple weeks and you can watch the trees unfurls their leaves and the earliest spring flowers pop up. Tourist sites are sparsely visited this early in the season and I found staff more than willing to help me around their wheelchair obstacle courses. Street vendors are ready to bargain too. But, take note, castles and museums open a bit later in Slovakia than next door in the Czech Republic so plan to stay into May to make the cultural tour.

So, what did I learn that I can pass on to another disabled traveler?

Our travels required a rental car. Germany had the nearest rental agencies offering cars with hand controls. Even then, they insisted that the controls be mounted for right hand use. I use my left hand. We picked up a regular rental car in Vienna and my sister did all the driving.

Basilica at Nitra Castle

The wheelchair-accessible room at the Hotel Danube (Danube@hoteldanube.com) in Bratislava was very comfortable. At lobby level is an accessible computer room with Internet access, a restaurant and a bar. I recommend the hotel but it’s not perfect. If you’re a long-time wheelchair user you’ll be familiar with the drill of using the garbage-bin elevators to get into the mezzanine-level restaurant through the kitchen. Don’t imitate me and risk your life being carried up the stairs to the tiny mezzanine-level gift shop. You won’t miss anything. The small first floor gift shop was pricey for high-end items that can be easily be found in shops a block or two away. The shop did have a helpful selection of literature on Slovakia in English. Stock up!

Orava and Nitra were our other main stops. The Park Hotel in Dolny Kubin has a wheelchair ramp. Their small accessible room includes adaptations made to the bathroom. Typical of hotels that look on disabled guests as a burden, the room I stayed in was at the far, unlit end of the hall. The front desk staff was gracious but the owner was positively cruel to my sister and unapologetic when the mistake proved to be entirely his own. I would steer you away from this untidy hotel if it were not the only choice in town.

Nitra offered several wheelchair accessible hotel choices. I selected Koruna Hotel (koruna@conet.sk) on a hillside overlooking the city. I can recommend it although family kept us so busy that I never explored anything beyond the well-designed room itself.

Watch for positive changes in accommodating people with disabilities in Slovakia. Joining the European Union is bringing in new industry and raised expectations of tourists. Do your best to enlist family or anyone you know who is visiting Slovakia to research the sorts of accommodations required by your particular disability.

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